Receiving a diagnosis of Alzheimer’s or other forms of dementia can be overwhelming for both the individual and their family. The initial shock may lead to confusion, fear, and uncertainty about what the future holds. However, with the right support, individuals with dementia can continue to lead fulfilling lives. If a loved one has been diagnosed with dementia, here are some ways you can offer meaningful support during this challenging time.

1. Offer Emotional Reassurance and Acceptance

The first step in supporting a loved one is acknowledging their emotions. A dementia diagnosis can provoke a range of feelings, including denial, fear, sadness, or frustration. Be patient and provide reassurance that their emotions are valid. Avoid offering empty platitudes or pretending everything is fine. Instead, validate their feelings and let them know that they are not alone in this journey. Listen actively and allow them to express their concerns without judgment.

2. Educate Yourself About Dementia

Understanding the condition can help you support your loved one effectively. Dementia is not a single disease but a collection of symptoms related to various cognitive impairments. By learning about dementia types (e.g., Alzheimer’s, vascular dementia, Lewy body dementia) and their symptoms, you can better anticipate challenges and tailor your approach. The more informed you are, the better you can make decisions regarding treatment, care, and lifestyle adjustments.

3. Encourage Routine and Familiarity

Routine is vital for individuals with dementia, as it provides a sense of stability and security. Help your loved one maintain familiar daily routines, such as regular meal times, bedtime, and activities. Simplifying their environment by removing clutter and labeling important areas (e.g., the bathroom, bedroom) can also make daily tasks easier and reduce confusion. Consistency can be a calming factor for those living with dementia.

4. Promote Physical and Mental Engagement

Physical and mental stimulation are crucial for slowing cognitive decline and maintaining overall health. Encourage your loved one to stay active through walks, gentle exercises, or hobbies they enjoy. Memory games, puzzles, or even engaging in creative activities like drawing or playing music can help keep their mind sharp. Additionally, staying socially connected is important. Involve them in family activities or connect with local support groups where they can interact with others in similar situations.

5. Help with Planning for the Future

Dementia often progresses over time, so it’s important to plan for the future as early as possible. Talk to your loved one about legal and financial matters, such as creating or updating wills, designating power of attorney, and making healthcare decisions. This can ensure that their wishes are respected and that you’re prepared for any eventuality. It also provides them with a sense of control over their future, which can be empowering.

6. Take Care of Yourself, Too

Being a caregiver can be emotionally and physically draining. It’s important to prioritize your own well-being, as caregiving can lead to burnout. Take time for self-care, whether it’s through exercise, hobbies, or simply resting. You might also want to consider respite care services, which can provide short-term relief, giving you a chance to recharge.

7. Stay Positive and Focus on Quality of Life

While dementia may present new challenges, it’s important to focus on your loved one’s remaining abilities and help them maintain a good quality of life. Foster an environment of acceptance and love. Help them celebrate their achievements, big or small, and engage in meaningful activities that bring them joy.

Supporting a loved one after a dementia diagnosis requires patience, flexibility, and compassion. While the road ahead may be difficult, with the right support and understanding, your loved one can continue to experience moments of joy and fulfillment throughout their journey.

8. Educate yourself about resources available to you in your community

Programs for people living with dementia in Ottawa like Carefor’s Carling and Perley Adult Day Programs, the Respite House and Carefor’s Richmond Care Home, a retirement home for women living with dementia can help.

There are also numerous resources are available via the Champlain Healthline website.